Christian Rowan Updates…
Update as of August 20th 2023 form Shawnda:
I wanted to reach out and give you all an update on Christian and my health. For those of you that may not know us Hello, I am Shawnda Rowan and my son Christian Rowan was a recipient of pigbowl 2019. Christian and I have been over coming the massive curveballs life has thrown at us since being diagnosed with CTLA4 haploinsufficiency. Christian is thriving daily but is still not growing as much as the doctors would like. They want to get his bone marrow transplant on the books for the next year or so. This means lots of testing and doctor visits. On top of that I myself have been dealing with massive health scares and am now being looked at and followed more closely. We aren’t sure what the rest of this will bring but we are so grateful to have made it this far. We take one day at a time and thank God for each day he gives us. Christian’s mother and father are no longer together. Shawnda (me) has both William and Christian and is raising the boys near Seattle. Prayers are always appreciated.
Update as of July 9th 2021 from Shawnda:
Christian is doing fantastic he was started on new medicine that changed his whole life is was a battle to get insurance to pay for it so at the beginning I was paying 3k a month put of pocket for his treatment but now insurance covers it. He will be 3 this year and is growing each day. He can now walk and talk and he is just living life. We have monthly infusions so about every 4 weeks he goes in for about a 6 hour infusion which can sometimes be difficult cause what 2 1/2 year old can sit still for 6 hours. But overall he is doing wonderful!
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Update as of September 1st 2020 from Shawnda:
Christian is getting big and starting to walk!
He is receiving ivif infusion and has finally been approved to eat foods by mouth!
He still has a long way to go but is finally growing at a normal pace.
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Update as of August 2020 from Blake:
Unfortunately Blake and Shawnda are currently separated. William is living with Blake and Christian is living with Shawnda. Christian is getting blood transfusions and is gaining weight really fast!
